We are back with another episode of Autism: Hope in Action! This is an expansion of our intentional dialogue that we long to have with families around the country about life, challenges, triumphs, best practices, and best therapies that exist today. It is our hope that we will be able to reach more families […]
Every April is Autism Awareness Month, and April 2 is World Autism Awareness Day. Why not celebrate April 2 by wearing blue to show your solidarity, and do something meaningful to support autism advocacy, research and therapy in your neighborhood? Autism is a spectrum, and symptoms vary from person to person. There is no ‘typical’ autistic person. However, one symptom that almost all autistic people share is sensory overload, which can result in anxiety, panic attacks, and for the severely autistic, disruptive behavior. The autistic brain has trouble filtering out ‘background’ noises, sights and thoughts, so is often distracted and overwhelmed.
Sensory overload is at the root of many other symptoms of autism, such as fragmented attention, and difficulty with social interaction or adapting to new environments. All these problems result from the autistic brain’s inability to efficiently separate relevant from irrelevant inputs: in problem-solving, understanding social cues, and managing change. Sometimes, this extra input can result in creative thinking and insights, but usually at the price of weaknesses in many areas of life that non-autistic people take for granted. Here’s a short video that illustrates what sensory overload feels like. Why not start Autism Awareness Month by sharing this post with your friends, so they’ll understand autism a little better?
By Luke Beardon
Decades ago I found myself working with a young woman with autism. I had done my reading of the autism texts of the time, and was singularly surprised when nothing I had read matched up to the person I was sat next to. There was no flapping, she had no interest in my earrings or buttons, and she certainly wasn’t even lining anything up.
We know so much more about autism now but the idea that all people with autism are disordered, impaired, or somehow “lesser” is one that still needs to be challenged. Having worked closely with people with autism for more than 20 years, I have had the pleasure of meeting many hugely intelligent, insightful, kind, caring, loyal, skilled autistic individuals, including two of my best doctoral students who both graduated successfully and are now prominent in their respective fields.
Some of the strongest marriages I have encountered are between people with autism, and I have also met multi-millionaire entrepreneurs who have been identified as autistic.
Identifying not diagnosing
So, the question remains, why is it that autism continues to be seen as a disorder, with terms such as “impaired functioning” still so rife within the literature and current diagnostic manuals? Why is it that one needs to present as a “problem” before being in a position to be identified as autistic? Even the term “diagnosis” brings along its own associations with “illness” or “disease”. Surely, this gives out the wrong message to all involved – parents, individuals, and the public.
For years I have been suggesting “identification” as a more appropriate term, which counters the pejorative language so often heard in reference to autism.
Without doubt being autistic in a world populated in the main by people who are not can cause huge issues for the individual and their family. But this is not the same as suggesting that the problems are caused by being autistic. The very fact that there are plenty of autistic individuals who are hugely successful demonstrates that being autistic does not preclude anything at all. Actors Dan Ackroyd and Daryl Hannah, and singer Courtney Love are to name but a few, while others have retrospectively identified other potential big names such as Stanley Kubrick.
Some research has shown poor outcomes for people with autism but there have been fewer evaluations using real-world measures such as employability, self-sufficiency and social support. Some of the ways we measure ability may also be problematic – take memory and learning, for example. The task support hypothesis – the idea that situations can be created for individuals with autism that capitalise on their areas of strength – can lead to situations where the ability to remember is increased.
The sad fact is that there are still schools of thought that deny the fact that people with autism can lead very successful lives; comments such as “she will never be able to have children”, or “he will never go to university” are still way too prevalent. Parents of newly identified children are still sometimes told what the future will hold, despite the fact that no one has a crystal ball. Perhaps many of the problems stem from being in a poorly understood minority group, rather than directly from being autistic?
Nonetheless, things are changing for the better – however slowly. The National Autistic Society, for example, promotes employment for people with autism. The Equality and Human Rights Commission is working to ensure a level playing field in the workplace, although there is some way to go before this is fully realised.
At the Autism Centre at Sheffield Hallam University we’ve been working to further these initial advances; to continue to promote a more accepting view of autism and to encourage society to recognise the potential of autistic individuals. One of the courses we run in collaboration with the National Autistic Society has welcomed a plethora of autistic speakers, guest lecturers and autistic students who share insight and expertise.
So, have perceptions changed over the years? Well, for absolute certainty I can say that mine have. I no longer assume that all publications are correct, and recognise that all autistic people are individuals. I have learnt to challenge the notion of impairment and disorder, while still recognising the huge challenges faced by individuals and families. I have begun to recognise the damage that can be done by ignorance and misinformation. And I have learnt that changing perceptions through a better understanding of autism can significantly improve lives, and the best way to develop an understanding of autism is to listen to those who are autistic, their families and friends.
In terms of general perception – well, society is certainly moving slowly in the right direction, with more and more autistic people self-advocating and promoting their strengths, but there is an awful long way to go.
Luke Beardon is Senior Lecturer in Autism at Sheffield Hallam University
Read original article here.
This October Marvel is joining STOMP Out Bullying with a number of variant covers for their titles Rocket Raccoon #4, Guardians of the Galaxy #20, Avengers #36,Inhuman #7, Hulk #7, Captain America #25, Legendary Star-Lord #4. This is all to support National Bullying Prevention Month, something that has been on everyone’s mind even more after the awful events of last week.
Ross Ellis, founder and Chief Executive Officer of STOMP Out Bullying stated, “We are privileged to join forces with Marvel Entertainment on this critically important bullying and cyberbullying prevention campaign. Bullying and cyberbullying have reached epidemic proportions, with one out of every four kids being a victim. And bullying transcends race, ethnicity, gender, and sexual orientation; in fact, some of Marvel’s greatest Super Heroes were themselves bullied as kids and teens. But just as Spider-Man, Captain America, and Marvel’s many other Super Heroes were able to triumph and go on to combat evil, so can every…
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As we focus on May as Mental Health Awareness Month, we know that there is a great deal of misunderstanding about mental illness. Unfortunately, negative attitudes and beliefs toward people who have a mental health condition are common. Although 1 in 4 people have some form of a mental health disorder, a recent study found that in Europe and the United States up to 75% of those affected don’t receive the treatment they need.
Too often people are reluctant to seek help because of the stigma attached to mental illness and are afraid to let anyone know they have an issue. Those most affected by the stigma are young people, those from minority ethnic groups, members of the military and healthcare professionals.
What can you do? Take the pledge to break the stigma. People across the country are finding innovative ways to start the mental health dialogues in…
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Tommy Hilfiger’s daughter and stepson both have autism. The fashion designer recently appeared in a public service advertisement (below), to emphasise the importance of early diagnosis and intervention. This is what he said about it (from the Daily Mail):
The government is not involved in it. People aren’t donating enough money. There’s not enough research …
There’s no cure. It needs help, so we’ve become involved.